They call him non-verbal. But right now, in his bed, laughing and refusing sleep he’s having a full conversation with me. Mendy is 12 years old and has Angelman syndrome. This isn’t just a bed, it’s a Knut safety bed, designed to keep him safe at night while still giving him comfort, freedom, and dignity. And moments like this laughter, connection, pure joy are everything. Endless gratitude to Variety the Children’s Charity @varietyvic for a gift that truly keeps giving 💙 #AngelmanSyndrome #Non
0:44
They call him non-verbal. But right now, in his bed, laughing and refusing sleep he’s having a full conversation with me. Mendy is 12 years old and has Angelman syndrome. This isn’t just a bed, it’s a Knut safety bed, designed to keep him safe at night while still giving him comfort, freedom, and dignity. And moments like this laughter, connection, pure joy are everything. Endless gratitude to Variety the Children’s Charity @varietyvic for a gift that truly keeps giving 💙 #AngelmanSyndrome #Non
6.3K views2 months ago
FacebookMagical Mendy
Words shape how the world sees people with Angelman syndrome and how they see themselves. When we choose people-first language, we honor individuals for who they are, not a diagnosis. Behind every word is a person with personality, family, likes/dislikes, and a whole life being lived. ✨ Words matter. Choose them carefully. #angelmansyndrome #angelmansyndromefoundation #angelman #AngelmanStrong #StrengthInCommunity
1:05
Words shape how the world sees people with Angelman syndrome and how they see themselves. When we choose people-first language, we honor individuals for who they are, not a diagnosis. Behind every word is a person with personality, family, likes/dislikes, and a whole life being lived. ✨ Words matter. Choose them carefully. #angelmansyndrome #angelmansyndromefoundation #angelman #AngelmanStrong #StrengthInCommunity
854 views3 months ago
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